In February 2013, after just 24 weeks of pregnancy, God decided that it was time for Malachi to be born. Malachi came out without a heartbeat at just 1 pound 12 ounces. After 15 long minutes of CPR he began to fight, and hasn’t stopped since! The oxygen deprivation caused his brain to hemorrhage on both sides resulting in Grade 4 bleeds (the worst on the scale). We were told that Malachi’s quality of life would be very poor and we were given the opportunity to discontinue life saving care. Jake and I have always felt that Malachi’s future rests in the hands of God and we chose life for our son.

Our road is not easy and Malachi has many challenges. His main diagnoses include Hydrocephalus with a VP shunt, Hypoxic Ischemic Encephalopathy, Cerebral Palsy, Cortical Visual Impairment, Epilepsy, Severe Reflux, and multiple orthopedic abnormalities. He has had 14 surgeries and several hospitalizations but has continued life with a smile on his face. Although he is very cognitively and developmentally impaired, he is still a very intelligent little boy who can express his likes and dislikes and communicate in his own way. And Malachi loves music with a passion.

In November 2017 we welcomed baby brother Levi into the world at 34 weeks gestation. Shortly after his birth he was taken to the NICU where they discovered he has paradoxical vocal cord dysfunction (also called bilateral vocal cord paralysis). Since the cords do not move it makes breathing very obstructed and difficult. The typical treatment is a trach. And since the cords can’t close to protect his airway, feeding is a safety concern so Levi has a g-tube. Doctors also discovered several small areas of brain damage leading to a diagnosis of Hypoxic Ischemic Encephalopathy. We flew Levi to Cincinnati to try several experimental procedures to avoid a tracheostomy. After 20 procedures and surgeries and a 4.5 month stay in the NCU it seems that we have succeeded but his journey is still far from over as this is a long term medical issue. There is a 50% chance his vocal cords will wake up in his lifetime so we are praying to be on the winning end of that statistic.

This blog serves as my personal journal so that I can remember how far the Lord has brought the Carroll family. Some entries may bore you while others give you more information than you care to know, but it has been an outlet for me to put my thoughts into print. Thank you for taking the time to pray for more miracles for Malachi and Levi.

To view journal entries from the first three years of Malachi’s life, visit https://www.caringbridge.org/visit/malachicarroll


10 thoughts on “About

  1. Leah, I’ve read your posts every week since you started writing them. As a NICU nurse, I feel like they give me an insight to our babies and what may come of their futures that I would otherwise never have. Thank you for taking the time to write them. I’ve cried with you and rejoiced with you. I loom forward to seeing what’s happened with sweet Malachi each week! You guys are an amazing family! You are in my thoughts.


  2. I just wanted to say I think you are doing a wonderful job! As a neonatal nurse practitioner in a nicu, it really opened my eyes to what our patients families go through. Your posts have made me smile and cry. Keep up the good work and keep smiling.

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  3. Pingback: Chick-fil-A encounter moves mom of son with special needs to post touching thank you note – CHB Blog

  4. I am so pleased you posted this & Fox news! My daughter also has cerebral palsy and also wore braces on her legs. I always appreciated the honesty of children who asked questions. It was a delight for all the reasons you stated. Nearly all the time adults looked, pointed and whispered. As she grew older and became aware of this, she began to feel like a freak. She is very bright and became angry and it was difficult for her and us. With God’s help and the love and support we made it through.

    She was very determined to do what all the other kids did. She did not take the elevator. She struggled up and down the stairs instead. She eventually did not need braces and graduated from college. She was exhausted every day from walking to classes, often fell asleep on her bed and missed supper at the dining hall. She is now 30 and the mother of 2 young boys.

    Anyone can give birth to a child with a disability and their worth as human beings in our society should be welcomed and never questioned. God bless you, your son, your family members and all those that help him, and all the wonderful people in the medical & educational professionals who assist him and you. P.S. she still walks with a limp and people still do the same but it does not bother her anymore. She is one tuff cookie!

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  5. Pingback: Chick-fil-A encounter moves mom of son with special needs to post touching thank you note – DefinitelyGold

  6. Pingback: Chick-fil-A encounter moves mom of son with special needs to post touching thank you note – The Washington Feed

  7. Leah, hope this gets to you. Not sure how to do comments. Be sure they know about your leg clot. Another clue! And that you are on treatment in case that would skew and test results. I’m a peds nurse. Praying for your family.


  8. When I began reading your blog, I immediately thought of my favorite verse; one that has brought me much comfort during youngest daughters illness. Isaiah 41:10. It was a God moment for me! We’re praying for you daily. Love n blessings to you, Jake, Malachi n Levi.


  9. Your posts are my weekly devotion. I appreciate your words of wisdom and believe that God is speaking through you. Your life experiences and how you share them are helping to keep some of us on a more faithful path. Your family does indeed have a purpose! Thank you.


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