We made it back from South Carolina on Wednesday evening and life went back to its normal chaos. Overall the boys did really well at camp! It helped that we had lots of chaperones and teens eager and willing to help!
And don’t be too freaked out…Jake and his friend Tanner look eerily alike when they wear their matching soccer hats haha.
Like I mentioned last week, Jake stayed with the teens at camp and the boys and I stayed in a rental house about 15 miles from the camp. The house couldn’t have been more suited to our accessibility needs and made life so much easier than a hotel would have been.
Having my two nurse friends come along was such an incredible gift. We would spend all day at the camp and leave around dinnertime. Every night I would leave Levi with them at the house and drive back to camp with Malachi to hang out with the church kids until midnight or even 2am.
Malachi is a social butterfly so he fluttered from person to person, just happy to be around so many fun people.
Here is a sweet Malachi giggle video for you:
And Levi learned some tricks and games from the big kids.
Here is a Levi giggle video:
Levi took lots of naps throughout the week, and when you are on the go you just sleep wherever you can.
We spent in time to spend the fourth of July at the house, enjoying being home in our own comfortable environment. I floated the river with a friend, something I don’t think I have done since before Levi’s pregnancy over 2.5 years ago….which means I haven’t gotten some serious sun in a long time either. I sheepishly decided to not apply sunscreen and definitely regretted it on the 2.5 hour float. And when you are floating in a tube only one side of your body gets the rays, so I am looking quite ridiculous these days. Oops!
This weekend we had some friends from Ohio come to visit with their two young daughters. We laughed all weekend at how enamored Levi was with the girls, following them around and trying to mimic the things that they were doing.
Spending time around other kids can always turn into a comparison game for me, as I see the things that a nine month old can do but Levi has yet to achieve. Sometimes my mind likes to pretend that he is quickly catching up on milestones, but the reality is that he moves at his own Levi pace. I have to constantly remind myself to be content with his pace as I tend to start panicking a bit.
We took our friends to the river down the road so their daughters could play in the water. River water is a no-go for children with g-tubes because of the bacteria so Jake took turns taking the boys out into the water to put their toes in.
Levi went first and Malachi and I sat in the shade together. When Levi and daddy walked away Malachi started sobbing. He didn’t understand that they were taking turns and thought that Levi was getting to swim and he wasn’t. I explained to him that no one was swimming in the river, and that the water was too shallow for ANYONE to swim. I also explained that it would be his turn next, but he was so sad with big tears rolling down his face.
When it was Malachi’s turn he was beaming with joy and loved the cold water on his toes.
It is always so encouraging to see him react with typical emotions to things. Early on in his life he would respond to pain with laughter and seeing him not quite “get” what was going on around him was hard for us to see. But lately he has been responding so appropriately to situations and it has been a wonderful reminder of how far he has come.
It is so wonderful to see the sweet six year old boy in that beautifully broken brain.
When youth camp week rolls around each year I hear a lot of comments about how crazy Jake and I are to tackle so many roles, especially with our medical kids. People make comments about our busy schedule and how tired we always are (which is very true). And sometimes I find myself contemplating their suggestions to scale things back a bit and to focus more on ourselves and our little family.
But then I am reminded that I am not on earth for me. I am here to bring glory to God.
Matthew 5:14-16 says “You are the light of the world. A city that is set on a hill cannot be hidden. Nor do they light a lamp and put it under a basket, but on a lampstand, and it gives light to all who are in the house. Let your light so shine before men, that they may see your good works and glorify your Father in heaven.”
We aren’t called by God to focus on “us”. We aren’t called to get more “me time”. We are called to shine our light to THE WORLD! That is what brings God glory.
When we allow our focus to shift towards ourselves we allow our priorities to change. Yes, being youth directors at our church can be so tough, especially during camp week each year. I could stay at home and send Jake alone and be completely justified in doing so. But instead I choose to go and pour as much of my light into these kids, knowing that it brings glory to God. And in turn, watching their faith grow draws me closer to God.
I have had this on my heart for awhile and yesterday a friend posted a quote from Tony Evans that reiterated the message:
“You exist for God. That is why you were created. You were not made just to get a good job, to live happily ever after, to get married, and to have kids. Those you call blessings and gifts. You were created to bring God glory and to accomplish His purposes on earth. That’s why you will find no rest in life until you find rest in Him.”
Sacrifice is something we naturally tend to turn from. It is painful, uncomfortable, and unnatural. But when you remember that your sacrifices allow God to be the focus then it doesn’t hurt at all. Instead it refreshes your soul in an indescribable way.
Every day I have to ask myself if my plans will bring glory to God. Many of them don’t naturally do that so I have to make a conscious effort to find a way to bring Him glory. Sometimes that means offering an undeserved kind word to someone. Sometimes that means opening the door and letting someone get in the line in front of me. Sometimes it means getting up with Malachi when Jake needs the extra sleep. Sometimes it means picking up trash on the side of the road. Every time it involves me putting someone else above myself.
God sees our hearts and he sees our intentions. And even when we aren’t shining a light for all to see, He sees our hearts. And the motives of our hearts are what truly bring Him glory.
I feel like I am rambling so I am going to wrap it up for tonight! Please be in prayer for the boys, that we stay healthy the rest of the month leading up to our week in Cincinnati. As we get closer and closer to that trip I get more excited to hear the report from the doctors about Levi’s airway. He is sleeping without oxygen right now and staying at very safe levels which is a praise. I would love to hear them say that he has been made whole!